Wet and Aggressive Corella challenges Magpie

Wet and Aggressive Corella challenges Magpie

Monday 6 October 2014

Tomorrow

For quite some time now for a variety of reasons I have been putting myself to the back of the queue and treating myself with ignore.

Which is wrong.  And I know it is, and am (slowly) starting to do something about it.

My MS is progressing and, like the unwelcome visitor it is, has made itself right at home.  My pain levels are up, my fatigue levels are up.  Other manifestations include a foggy and forgetful brain.  Muscle spasms.  Spasticity.   My hands and legs are reluctant to obey simple commands and I am never quite sure where they are.

Which has become dangerous.  Our shower is on a hob and I have to step up and over a metal lip to get into it.  I have damaged my toes multiple times and I am always bruised .  And I am well aware that a dramatic fall is a real possibility.  Probability even.

So I have bitten the bullet and we are having extensive bathroom modifications.  Extensive and obscenely expensive modifications.  Which will take three weeks to complete.

The existing shower will be ripped out and replaced with a walk-in one.  Which has to be located (for drainage reasons) on the other side of the room so the bath will have to go.  The floor will be pulled up and non slip tiles laid.  Grab rails.  And, since we are doing this much I have agreed to replace the vanity (which has to be moved anyway) with a wheel-chair accessible one (which with luck I won't need for some time).  As an aside, we cannot buy a wheel-chair accessible vanity here.  It has to be custom made.  A stand alone basin?  No problems.  One with a bench so I can have soap, a toothbrush and other things to hand?  Nope.  Hiss and spit.  Some drawers wouldn't go astray either.

I have been wishing painful haemorrhoids on most of the tradesmen who came to give us quotes.  Two of them gave us quotes which included items we hadn't requested and didn't want or need.  They also ignored things we had requested, and included vague statements such as 'if asbestos is present the quoted price will increase'.  When I asked questions they disappeared faster than speeding bullets. 

There is another bathroom in the house but it is, if anything, less accessible than the one that we are having modified.  The work starts at seven thirty tomorrow morning and the next three weeks look like being chaotic.  Builders, plumbers, electricians, plasterers, tilers and painters.  And the asbestos removal team because there is sheet asbestos in the bathroom.  The tradesman we selected tested for it.  $1400 to have it removed and disposed of.  Sigh.

Jazz loathes and detest visitors, particularly white van men, and will piddle copiously and inappropriately to express his displeasure and reclaim his territory.  Jewel will retire to the wardrobe and moult up a storm. Part of me sympathises with them both. 

I am tired and overwrought even before it starts and expect to be largely absent from the blogosphere.

And on a much more serious note my youngest brother is also having issues with asbestos.  Much more serious issues which make my heart hurt for him and his wife.

Between 1968 and 1979, a private contractor from Canberra known as "Mr Fluffy" (such an innocent sounding business name) insulated residential dwellings by pumping friable loose asbestos fibres into the roof cavities.  And my brother's home is a Mr Fluffy home.   The house was insulated before his wife bought it.  In 1990 when the danger of loose asbestos was better understood it was removed.  And we now learn that residual asbestos remains.  And there is no safe level.  At the moment it appears likely that the house will have to be demolished.  And they will get no choice about it.  A compulsory reacquisition and demolition.  When?  No-one knows.  Who pays for it?  No-one knows.  Has the asbestos contaminated their furniture and clothing?  Perhaps.  Testing will take place.  When?  No-one knows.  So they are in limbo.  And worried for their health, for  the health of his wife's children (who grew up in the house) and for that of the visiting grandchildren.  So I have my fingers, toes and eyes crossed.  Which adds to my mobility issues.

Have fun in my absence.  I will miss you, but will be back in the fullness of time.  And with luck will be able to stop in on the weekends at least.  


162 comments:

  1. Oh, that is quite a disruption, I must say. I will miss you, but I've only got to visit your beautiful pictures to enjoy myself. Don't worry about me, I'll be so glad when it's all in the past for you. So awful about your brother! Sending you lots of love and hugs.

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    1. DJan: Thank you. Walk well, and jump well while I am away.

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  2. Your post came up just as I finished commenting on your previous post. I am so sorry for your troubles. I don't think I knew that you have MS. What a beautiful disposition you have in spite of it. I don't blame you for bracing for the unknown terrot of remodeling. Been there, done that. It's a nightmare, but luckily everything ends, and that too will some day just be a story you tell. I feel terrible about your brother. Mostly I hope that everyone in the family is safe, healthy and devoid of any traces of asbestos.
    I imagine you'll be spending lots of time in your garden, 'cause your house will be uninviting. So, enjoy that garden, absorb its peace. See you in a few weeks.

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    1. Myrna R.: I will be spending as much time in the garden as I can. Thank you for your good wishes for me, and for my brother and his family. Beautiful disposition? There would be a lot of argument about that...

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  3. I do hope your doctor will be able to help manage the great discomfort you are having to deal with. Sending good thoughts on the renovated bathroom and as for your brother, what a stressful time they are having too. This asbestos is a serious issue and I wish them only the very best, as I do you. You will be missed but look forward to hearing how it all goes when you are able to get back on line. Big hug from me.

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    1. DeniseinVA: Finding a new doctor (and neurologist) is next on the list. Thank you for your good wishes. And hug.

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  4. I am so sorry EC. It sounds overwhelming to read about it, I can't imagine the toll it is taking on you and possibly why the MS is acting up. MS is a difficult disease and my heart goes out to you, wishing if only there were something someone could do that would alleviate your pain and suffering. The cost of your modifications is probably mind boggling ... and shouldn't be. I am thankful for you that you can have it done. As for your brother, how devastating ... we have the same issues here in the states, though I haven't heard of anyone having to have their home demolished. And the fear for their health will always be there, frightening. We will miss you ... hopefully you can find some good reads to get you through these arduous weeks. If prayer would help, I will be doing it ... I will think hard on positive things for you so maybe even the energy of positive thinking will help you through it all ... you are such a good person, I hate that this
    is happening to you. You are strong, but I know that doesn't make it easier ... just do your best to be well and the same goes for SP. My heart aches for you.

    Andrea @ From the Sol

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    1. Andrea Priebe: Thank you. Stress doesn't help anything but whether it is the cause of the flare-up or the result is anyone's guess. I will get through it. And will be reading. Of course.

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  5. So sorry to hear of the problems, and I fully understand. Life can dump more problems on us just when we thought we had enough. I will have to sell our current place and buy another in case hubs needs a wheelchair as well. Even if he doesn't need one-I'm hoping, with his heart condition, stairs are not a thing he needs. I hope you get things done without too much disruption. I hate renovations because some contractors make it worse. Asbestos is a bad thing to have in your house here too, why did they never test it enough? Makes me skeptical of 'the latest thing'. Hoping all can cope. It is hard, and when it comes down to it, we do what we have to do, even when we think we can't.

    I worked with a girl with MS and know its effects. Take care of yourself in all this. We will be around when you can come back. Hopefully all will go well, and the felines will tolerate it with your comforting. You have my sympathies!

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    1. D.G. Hudson: I hope you don't need to move, in the short-term at least. That is another stress which you could well do without. Hopefully the medicos will have some sensible advice when your husband is due to come home.

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  6. Good luck with the renovation. Good that you're doing it before you really need it though. Dealing with workmen is awful. Good luck and try to have a bit of fun amid all the work.

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    1. Mason Canyon: Some of it I am doing early, and some of it should have been done quite some time ago. Swings and roundabouts...

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  7. Accepting the change is very hard and can make a person so depressed. I hope the bathroom comes out great and you get to add some of your personality to it. Pain sucks with MS and it is hard to control but I hope your doctor is willing to listen and treat you the best way he/she can. I have never been offered pain meds and it just surprises me that they ask the level of pain but don't ever treat it. Raising the baclofen level often does help my pain but some is just nerve pain that cannot be controlled without other options. My best to you and your family as you make this much needed upgrade to keep you safe.

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    1. Mom at home: MS pain is sucky as you know only too well. And I haven't found anything which deals with it well. Some medication takes the edge of it. A bit. Sigh.

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  8. Oh good luck with all that. I hate having workman in the house. We have so much that needs doing and I'm just avoiding it because I can't bare the weeks of upheaval. We'll miss you.

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    1. LL Cool Joe: I hate having workmen in the house. My smaller portion hates having workmen in the house. The cats hate it too. Perhaps they will all get complexes...

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  9. I'm so sorry about your MS's progression. That's a tough illness. I'm glad you're getting the bathroom renovations done. Your health and safety are top priority!

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    1. Stephanie Faris: There are worse diseases about, and on some levels I have been lucky. Just the same, it is past time for the bathroom renovations. Sigh.

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  10. I'm sorry for you EC, bathing is a bummer, I should know. And your brother, terribly sad. I am with you on MS.

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    1. Bob Bushell: Bathing is a challenge isn't it? Thank you - and keep taking those stunning photos.

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  11. EC, I read this and my heart sank. My thoughts are with you often. Take care of you xx

    I hope things are resolved quickly for your brother ~ I only read about the demolition of Mr Fluffy houses somewhere else just recently.

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    1. Carol in Cairns: Thank you. Scary times ahead for my brother and rather a lot of other people in Mr Fluffy homes. At least it is in the open now...

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  12. I am so sorry to learn of all this. What a bummer. However, it is good that you take of yourself and the future - you are very realistic in it. I felt my anger level climb when I read of all the extras and the money that is involved in all of this - this sounds like America! I wish for you that you can stay in good spirits despite all the unrest that will invade your home for the next week - and I truly hope that it won't take more than three weeks.

    I'm also sorry to hear about your brother. Asbestos is haunting us everywhere it seems. How terrible that he and his family are in this kind of limbo right now. All me best wishes to both you and yours.

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    1. Carola Bartz: Thank you. From the whole family.

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  13. I feel so much compassion and understanding for you! I have been under great deal of stress but am reminded it is nothing compared to yours. I so understand on all fronts...the turmoil and expense of remodling for any reason, the decreasing of agility, etc. The asbestos dilemna is esp. fearful as my dad died of mesothelioma...we girls did his laundry and live in fear of what befall us too. Thinking of you today.....

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    1. Bookie: Mesothelioma is a nasty, nasty disease. I am so sorry - and understand the fear you feel. Which will never go away.

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  14. Dear EC
    It is going to be quite a trial for you all, but comfort yourself with the thought that it will all be worth it. Terrible news about your brother and the asbestos issue.
    I'll be thinking about you all.
    Best wishes
    Ellie

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    1. Ellie Foster: My bathroom discomfort is only temporary. My brother others in the affected homes have a lot more to deal with.

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  15. mr. fluffy:/
    gosh what a sad learned-too-late.
    love and prayers for the sweetest sort of redemption
    in it all....that the worst you fear will be pushed back into never happened
    and that happy surprises kinda take your breath away (in a good way)
    in the days to come.
    Always possible,
    Jennifer

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    1. Jennifer Richardson: Thank you. Happy surprises would be/will be more than welcome.

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  16. I am sorry you are feeling so poorly- and a bathroom remod on top of it..whew! I think I might take a vacation, except someone has to stay and make sure the carpenters don't take off with the silverware! Sending positive thoughts and a prayer your way..feel better!

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    1. Terri: I am too much of a control freak to go away and leave the tradies to it. And suspect that I would be very, very sorry if I did.

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  17. Asbestos - pure evil! So sorry for your brother and his family.
    Glad you asked those contractors questions. Who knows what they were trying to get over on you.
    Will be thinking about you the next few weeks and hope it finishes on schedule. Just think how nice - and safe - it will be when they are done.

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    1. Alex J. Cavanaugh: The contractors received the questions and disappeared. No answers. Which didn't make me think positively about them - or their work.
      And yes, to be able to bathe safely will be wonderful.

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  18. Sorry for your troubles. It takes a strong heart to admit that you need help and aid. I know, I'm struggling with it myself. Sending love and healing vibes your way =)

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    1. CrimsonAnna: It is never easy to admit to weakness is it? Which is sad. And bad. Good luck.

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  19. O',
    my heart.
    What can I do, dear? What can I do?
    Love you from Minnesota. xx

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    1. My Inner Chick: You can keep on being your self. Your brave, driven, caring self.
      Hugs.

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    2. do you need books, reading material? xxxx

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  20. I think the level of concern about asbestos verges on hysteria. A local man, not knowing he had an asbestos roof, power-washed it, and the city came along and made him pay to have the soil around his house removed to a depth of three feet. I wrote them and asked for some studies to show that this was necessary, but, as expected, they didn't bother to respond. I've worked with a lot of asbestos over the years, and had one friend who died of it, but when I think about the millions of people who have been exposed without ever suffering any ill effects, I'm not impressed with the stringent measures taken because of it. I'm far from saying it's harmless, only that society does what it often does, which is to go from one extreme to the other.

    I'm very sorry to hear that you're on a bit of a downhill slide here. It sucks, sucks, sucks, and there's nothing for it but to do one's limited best. I wish I had something more to offer than that which is so painfully obvious. I love you.

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    1. Snowbrush: My brother, and the others in the affected home are not being given choices. Or answers. Which would make it so much worse. The loose friable asbestos is I believe worse, but demolition is a very big step. A very final step.
      And thank you for the love. It means a lot.

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  21. keeping you in thoughts and prayers that the renovations will go quickly and that there are no health issues with the family.

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  22. i'm going to miss you but this absence is a good and necessary thing!
    xox

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    1. kylie: A good thing, a necessary thing - which I have postponed for too long.

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  23. That bloody asbestos has a lot to answer for. It has caused untold harm and chaos to god knows how many family's. I'm am sorry that yours is now included in the statistics.

    As for you personally, EC ... I can only hope that the renovations are swift, and the progression of your MS is slow - or better still, comes to a standstill. Much is happening in the Land of Medicine. You are In my thoughts. As always. Big hug from across the ditch xoxox

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    1. Wendy: Bloody asbestos indeed. Sigh.
      And a standstill would be very nice.

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  24. I'm so sorry to read of your troubles, and can only imagine what a disruption the renovations will be. Take care and I hope for the best for you and your family.

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    1. Julie Flanders: The disruption will be vile, but temporary. And to be able to shower safely a decided improvement.
      I am still worried for my brother though.

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  25. Oh no. I read, and commented at your previous post before reading here...

    I am SO sorry to read that your MS levels have elevated, wreaking so much unwelcome pain on you, EC. You are among one of the best and nicest souls I've ever known, and it makes my heart ache for what you have to go through. I truly wish I could help in some way...

    Asbestos has affected so many lives with mesothelioma. I am very sorry to read about your brother's home and the resulting dreadful limbo he and his family are in. Sending positive thoughts and wishes that there will be no health ramifications for them. A truly frightening time.

    I hope that your renovations progress without delays and peace is restored to your household very soon. Tradesman chaos, never good.

    Thinking of you and sending much love, many hugs and positive wishes your way, dear EC xxx

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    1. Vicki: I will be fine. Really. And finding people like you has been such a high point in my experience here in the blogosphere. I hope your kiln problems are in the past and that your work gets the attention (and sales) it deserves.

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  26. I will miss you EC as you deal with the chaos of the renovation, worry for your brother, and experience worsening MS symptoms. Could the stress of all of this aggrevating the MS

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    1. Sue in Italia/In the Land of Cancer: Stress never helps, but I have been on the downhill slide for a long time now. And am finally taking some steps to make life safer. Disruptive but necessary steps. And of course I will continue to worry about my brother and his family - which is fairly useless.

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  27. My best and most heartfelt wishes to speed your renovation along. It's the right thing to do. Be calm as you can.

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    1. Joanne Noragon: Thank you. I have put it off for too long and it is past time. Which is what has given me the impetus...

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  28. Dear EC. We shall all miss you heaps, but there will be many loving thoughts and prayers directed your way for the duration - and think of the lovely new user-friendly bathroom you will have at the end of it all. Clearly you couldn't have carried on in what was a potentially very dangerous and damaging environment, but that bullet sure must have taken some biting!

    I hope it all goes as smoothly as any building project possibly can, and that your poor brother's problem is resolved. You have so much to deal with; I hope that your gorgeous garden will help, and that the cats don't get too psychotic. (In our once-sparsely populated subdivision, there are two new houses being built at the moment, one each side of us. Poor Sophie disappears straight after breakfast, and doesn't come home until dark, and Manu the dog has barked more in the last few months than in the previous 8 years of his existence!)

    Hugs to you :)

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    1. Alexia: It won't be fun, but our part of the pain will be fairly quickly resolved. And the cats will be psychotic (Jazz in particular) but their pain will be short lived too.
      My brother? Longer and more frightening.

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  29. please take care of yourself and pamper yourself, I hope your construction goes quickly and to your satisfaction.

    I hope the asbestos problems are resolved quickly and to satisfaction if
    possible.

    May your garden bloom all season long profusely, you will be sorely missed.

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    1. Linda Starr: Fingers crossed for my brother. And the renovations WILL be done to my satisfaction.

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  30. I will miss you, and hope for a speedy remodeling for you. Please take care of yourself. I have a walk in shower and truly love it, but you do still have to be careful for slips.

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    1. Lisa: I am really looking forward to my walk-in shower. The non slip tiles and the grab rails won't go astray either.

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  31. Somehow it all seems too unfair that those with chronic and debilitating illnesses are also those who need renovations such as this, and must pay personally, and at the same time pay for medications and cannot even work in many cases to pay for all those things ... for some people it is everything against them and nothing for them, so to speak.

    Along with everyone else, I wish the renovations to go on time and on budget. I also wish for the furry ones not to get too overwrought. Oh, dear, I know how futile that wish is.

    And hoping for the best for your brother and his family.

    Take care, EC and SP. Remember so many of us will be thinking of you every day, whether you are blogging or not.

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    1. jenny_o: The warmth and the support I have found in the blogosphere has been such a boon. Thank you so much.
      And yes, the furry tyrants will be overwrought. And will make me pay.

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  32. Good luck! I hate having tradesmen in the house even if they're lovely so I feel for you.
    x

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    1. librarygirl: Tradesmen are a sometimes necessary evil. And the prospect of a fleet of them is giving me the shudders.

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  33. I weighed whether or not to comment since I am to far away to offer anything of use except a little encouragement perhaps. You are always telling me to take at easy and take care of myself and dear lady may I suggest you do the same. take what time you need, rest, find something that makes you smile and dwell on it for awhile, be exceedingly good to yourself. don't allow yourself to get frustrated . I know how it is to feel inadequate and be at the mercy of others. You are one of the nicest people I have encountered on the web and I am and always will be your friend. the rat

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    1. mohave rat: Thank you so much. I am better at saying than doing, but will try.
      I hope you and Mrs Rat continue your upward spiral. About bloody time.

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  34. Oh dear! I'm so sorry to hear about your brother and his family. I'm told we have asbestos here in the flats somewhere but it is contained and not loose so as long as no reconstruction goes on we should all be safe.
    I hope your bathroom reno goes smoothly and quickly,with no unforeseen problems cropping up. Have you considered a shower chair for safety while showering? How annoying that wheelchair accessible vanities aren't more readily available. I presume that may be because they would have to be custom made regarding size needed etc. I think the hardest part of it all will be Jazz and his piddling, the smell and the cleanup can't be fun. Rest as much as you can while all the work goes on and spend some time enjoying that gorgeous garden.

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    1. River: I have considered a shower chair but at the moment the biggest danger is getting into and out of the shower. Once I am in there I am not too bad.
      And Jazz will piddle and it will pong and I will have to wash floors often. But he will be doing it out of fear, and I can't blame him.

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  35. ABOUT ASBESTOS: In my prior home, I scraped up three layers of old linoleum. The glue holding each layer was black glue with asbestos for strength. I went right through three layers, in a very large kitchen, with a circular sander. Dust was everywhere. Then I tackled the basement, using a paint scraper to scrape asbestos off the old furnace duct work. NOW? They happily will demolish a home. Mine survived because I stayed quiet and did the work myself and, 20 years later, I'm still standing.

    ON YOUR SHOWER: Right before I sold my "asbestos free home" I had a wheelchair accessible shower installed IN TWO DAYS. I was looking to the future, where I knew I'd be needed a shower with no step-up. (Which didn't do me a helluva lot of good since I had no idea I'd be selling the house in one year.)

    Life throws curve balls, and few of them miss us. Your shower CAN be installed quicker than whatever they're telling you. I don't know if Australia has a company that is an offshoot of our BATHFITTERS, but they did a super fantastic job.

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    1. lotta joy: I was never a good catcher and the curve balls are a challenge. One I will meet because I have no choice. Sigh.
      And multiple tradies have all cited the three week turn around - so it seems we are stuck with it. They will however do a good job. I will be watching closely.

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    2. I sanded an asbestos floor in a department store.

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  36. Fingers crossed for you brother and his family. A friend who has a Federal age care package had his bathroom modified at no cost to him, although they weren't as extensive as your renovations. Anyway, I would be surprised if you weren't up to speed with anything like that. Good luck, we will miss you and look forward to your return.

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    1. Andrew: I had hoped that the NDIS could assist with the cost, since it started in the ACT in July. And it seems it could. Except that my age group will not be entitled to any assistance before July next year. Which is too long for me to wait. And other services are being phased out. Sigh.
      Invalidity means I can use my superannuation. It will reduce my standard of living later - but it worth it on safety issues.

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  37. Oh ho! We have asbestos problems in the states, too. But, it was used here for a longer period of time. It is too bad about the children's exposure. I learned that my own children were exposed to asbestos in this house, but for a shorter period.

    Just last week, I decided that I will have pull bars installed so I can get into the doorway to the house. Plus, I need them for getting into the claw foot tub. It stands on feet, so that makes farther I must raise my foot to get into the tub. Right now, I hold onto the door knob as the door opens back almost to the tub. Plus, the way claw foot tubs are made, they are sturdy and have a lip to help hold onto them. A fall is just waiting to happen, and when I have surgery, the bars will be necessary. Oh, I am going to get a prescription for a bath chair, too.

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    1. Practical Parsimony: We will lose the bath in these modifications but realistically I cannot get into it or out of it anymore either. Good luck with your pull bars.

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  38. A walk in shower will be so nice for you. One of my clients just recently had one installed and it turned out so nice. Are you able to get an occupational therapist to make suggestions? Where I live an OT will come in free of charge and help with the planning.

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    1. ditchingthedog: An occupational therapist recommended the changes we are having done - and a few we have rejected on financial grounds, like changing the door to the bathroom to a sliding door. The walk-in shower and the grab rails will make life soooo much easier. And safer.

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  39. First, my dear, dear friend, it is with sadness I read that your MS is causing you so many problems athough, as with many ailments, we know it is progressive.
    Although it is going to be a pain in the aspect you will find your new bathroom wonderful to use. We had our little bathroom (we only have one) completely ripped out and re done 10 years ago (had to take out a bank loan to do it) as I could no longer get in to have a bath and the shower was in the bath. If I ever did manage to get in, then I couldn't get out again. We have a walk in shower with glass sides and glass door and we have to step down about an inch and up again of course but no problem. We also had a toilet installed which has made life so much easier as the bathroom is almost next to our bedroom. We were fortunate in having a nice vanity with basin and also a metre wide cupboard on the wall with mirror. It is a very tiny bathroom but quite adequate for our needs. I did have a shower chair after my first hip op which I bought so I'd still have it for second hip op but I rarely used it. Karen now has it as she borrowed it after her knee op and a second knee op is on the cards so she still has the shower chair.
    Precious was always terrified of anyone coming into the house and would hide under the bed but as she was an outdoor cat she would spend much of her frightened time under a bush in the back garden. Hope you don't have too much trouble with your two.
    We have asbestos in our house but mostly contained and the blow in insulation is, thank goodness, NOT asbestos. I always worry about my son as he did his apprenticeship at the Midland Railways workshop and asbestos was everywhere as it was used in the manufacture of engines etc.
    I feel so for your brother and his family. What a nuisance, no..more than a nuisance. A catastrophe to have that happen to them. Let's hope they will continue to be healthy with no asbestos caused health problems. Many people work with the substance for years with no ill effects so it is very hit and miss and I often think people who are perhaps susceptible to lung problems may be more prone to be affected by it.
    My thoughts are very much with you and will continue to be over the coming weeks while the renovations are done. Keep well and, in the meantime, enjoy that beautiful garden of yours. Hugs.

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    1. Mimsie: Even an inch step is a worry for me now, hence the walk-in shower. And I am really, really looking forward to feeling safe while I shower.
      All of the cancers seem to require a predisposition. Some people do everything wrong and escape, and others succumb. I am worrying for everyone exposed to the loose friable asbestos which I believe is the very worst, but it is pointless worrying. My caring cannot stop it if it is going to happen. Which my control freak self finds difficult.

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  40. I read this post with sadness. I have wondered how symptomatic your MS is, and I am so sorry to hear it is progressing. I hope you have a good neurologist, who can think of further ways to halt or slow this miserable disease for you.
    I know just how painful the remodeling process can be. Keep your eye fixed on the prize and don't let those workmen get away with anything less than perfection!
    I sympathize with your brother as well, and i hope their problems turn out less severe than feared.
    Uncross those fingers and toes, and know that instead a large number of people across this globe are sending good thoughts your way. I am one of them! Take the time you need - and we will be waiting to continue reading your blog when you get back! Good Luck and best wishes EC!

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    1. Susan F: Thank you so much.
      My general practioner recently retired and my neurologist SHOULD retire. When the renovations are done, doctor shopping is on the top of my list. Sigh.

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  41. My heart is with you as ever. One does want to protect one's felines, since they don't understand. But plenty of reassuring talk and petting goes far, I believe. The bottom line is that you shall have the accommodation you deserve, and for that I am happy. Take it a step at a time! Miss you already.


    ALOHA from Honolulu
    ComfortSpiral
    =^..^= . <3 . >< } } (°>

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    1. Cloudia: I would like to protect everyone I love (furry or otherwise) but it isn't always possible. And the dark lord and his offsider will get lots of love and cuddles and support.
      And to shower in safety will be wonderful.

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  42. Thank you all so much. As usual you have touched my heart and made my eyes sweat. It is early evening now, and we plan on a quiet evening before the chaos starts tomorrow.
    And there will, naturally, be photos.

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  43. Sending well-wishes and faerie kisses to make sure things go as smoothly as possible. It sounds utterly dreadful at the moment. :-(

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  44. I hope it all finishes up quickly and soon. So sorry to hear of your hardships. It always amazes and disappoints me when I witness how eager people can be to take advantage of others. Wish you and your brother and your families all the best. Please enjoy your time paying attention to you. It will probably be difficult but I hope you are able to. Sending lots of well wishes.

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  45. My heart goes out to you. Copious amounts of hugs...and hiss and spits over your impending ordeal. Personally, I'd go join Jewel and moult.
    Whoever heard of not being able to get a wheelchair-accessible vanity? How bizarre and maddening. Your brother's situation sounds like a nightmare. I hope things go smoothly for you, at least, and the workers finish quickly.

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    1. River Fairchild: I have been hissing and spitting rather a lot. And would love to join the cats in the wardrobe. Or under the bed. Or something...

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  46. Don't think of it as three week of hell; try to think that in three weeks everything will be done and you will love it and be happy with the job. That is what got me through the three weeks of our bathroom remodeling this summer. The noise and the dust are all gone now along with the memory of of the inconveniences it caused. I do hope it will be the same for you.

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    1. Starting Over, Accepting Changes - Maybe: The noise and the dust are incredible aren't they? But will be worth it.

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  47. Oh, dear. So sorry to hear this. I'll be thinking of you (and the cats) over the next three weeks and hoping things are going decently. Terrible news about your brother...hang in there, EC. xxx

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    1. Ms. CrankyPants: It seems to be going to plan which is wonderful. And thank you.

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  48. My heart goes out to you for your MS problems and the exacerbations that result from the need to remodel your bathroom. My heart also goes out to your brother and his family. I hope that your remodel goes smoothly and quickly. And I hope that your brother and his family can find a solution to their issue with minimal trauma. I can't imagine having to go through that. From what I've seen, you are a fighter. You'll make it through this.

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    1. Jesusan: Family mythology has always said that I am weak. Fortunately it is a myth and you are right I am a fighter.

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  49. Damn disease...
    I hope the reno goes well, we will be looking into a similar in the spring.
    Take care Sue, you are in my thoughts.

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    1. Karen: Damn disease indeed. And good luck with your renovations to come.

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  50. Oh shit that's all so full on for you,I can only imagine. The bathroom will be worth the misery, the workmen are buggers clearly though so I hiss and spit with you, and I dearly hope your brother and his family come out of this ok too, sending all I have, which is a bundle of love and more love, don't fret about the blog, it can wait. Xxx

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    1. All Consuming: Full on it is. And of course the tradies are buggers. It is part of their job description. Bundles of love gratefully received. Thank you.

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  51. Good luck with the changes. I hope you love them all when it's all said and done!

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    1. mail4rosey: Thank you. I hope we love them too.

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  52. Oh, dearie, dearie me! What a bastard! A couple of bastards actually...your MS, your brother's problems from asbestos...asbestos itself...and on and on.

    Oh, boy! I feel for you, EC...I really do. I'm almost having an anxiety attack just thinking about what you're going through and all the disruption that will be going on for the next three weeks or so.

    I think I'd be joining Jewel in the wardrobe for the duration! Poor Jazz...he can't help it, poor little fellow. My two furry mates would be having fits, too....they hate any hustle and bustle, and things occurring around them out of the norm.

    But there is that light at the end of the tunnel....one day down....at the completion of the circus you will have a brand new, workable and safe bathroom/shower; and hopefully, all the disturbance will be worth it and will soon be a faded memory.

    Hold firmly on to your sanity, my dear....and take good care. :)

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    1. Lee: I am hanging on to what is left of my sanity. And the cats are doing ok(ish). The days are a torment for them, but they settle down quiet quickly in the evenings.

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  53. Hang in there...I still can't believe something so innocuous-sounding as Mr. Fluffy caused so much havoc.

    I'm with Jazz. I'd want to piss on all of them.

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    1. Riot Kitty: Piddling on them does have some charm. Except that I know who the clean-up duties would fall to. Mr Fluffy is an incredibly misleading business name isn't it?

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  54. I'm so sorry for all of it. When it rains, it pours. If only it was pouring water, not asbestos on you and your brother. Keep faith. I hope you have a peaceful place, well away from home, to go to for the sake of regaining a sense of calm.

    Support and good thoughts to you.

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    1. Rawknrobyn: Thank you. Calm descends like a soft cuddly blanket in the evenings. And weekends.

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  55. Oh dear. you poor thing. none of that sounds at all comfortable. I hate the thought of workmen in the house, even if they’re only hear for a day or two.

    Could you not leave them to it ad go away?

    I wish you the best of luck. Let’s hope that they are efficient and considerate, not always a give with workmen.
    And that you will have the perfect bathroom at the end of it all.

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    1. Friko: It isn't comfortable, but will be worth it. I hope. Sadly it seems that I need to be there - to answer questions and to oversee the process. When I turned my back earlier this week the powerpoints for the bathroom were installed in the shaving cabinet. Which I want rectified before the tiling is done.

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  56. Your poor brother! And you, too, of course. I suggest you, Jazz, and Jewel go on holiday while the work is being done and leave the skinny one to make sure everything is done correctly :)

    See you when you return. I hope you have plenty of reading material!

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    1. Carol Kilgore: I do (of course) have plenty of reading material. Always.

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  57. My dear dear friend, i think I'm already missing you. I am sorry to hear you are in such pain. Additionally, modifications to the house are always a nuisance, but a necessary evil. I'll have my 150 dwarves cross their fingers so everything goes well and contractors do their job fast and efficiently. I'll also be praying for your brother's problem with the asbestos to be solved.

    Take good care of yourself and come back to us soon. Dragon Hugs!

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    1. Al Diaz: Dragon hugs gratefully received. And the crossed fingers of all those dwarves can't hurt either. Thank you.

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  58. Please please take care of yourself. You deserve it!

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  59. Wishing everything goes well...sorry to hear your illness is rearing its ugly head. Thankfully ours in a 9yr old house so no asbestos just other chemicals they will tell us are harmful in 20 yrs. We cannot win. Holding very good thoughts for you and sending big hugs!!

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    1. Donna@LivingFromHappiness: Good thoughts and hugs are always welcome. Thank you.

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  60. So sorry about the asbestos! I'm glad you are going ahead with the renovations though - that will be much better when it's all done, sounds like. Hugs - come by when you can.

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    1. Lynn: Thank you. With luck I will be able to catch up on blogs a bit tomorrow. Perhaps.

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  61. My heart hurts for you and your brother and his family. Having had a fair deal of upsets recently - my mother, my second brother, the mother of a loved one - I have an idea of what you're all going through.

    I hope life smooths out, and things become bearable, enjoyable again.

    A relative of mine has MS. Also, my brother-in-law's relative. I hope, pray, a treatment / cure is found.

    Tell them tradespeople to hurry up but to do a darn good job, we bloggers are waiting to hear how they've performed :-)

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    1. Guyana-Gyal: Thank you. I hope your upsets are firmly in the past.

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  62. Damn it-- when the eyes sweat, its no funny business is it?! I really hated hearing that your MS was progressing and that you have this construction going on while you deal with your symptoms. I hope you are not gone for too long. I AM curious, though, to see if absestos has any bearings on your symptoms. Will they stop progressing, or improve a little it is removed? My thoughts and hearts are with you. I'll cross my eyes with you.

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    1. Furry Bottoms: I don't think that the asbestos has any impact on the dread disease. Just the same having it gone is not a bad thing. At all.

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  63. I'm so sorry that you have to go through this - upheaval in your own home is horrible, but think of how lovely it will be. An elderly friend of mine had the same things done in her bathroom and now it is safe and attractive, far better than the old bathroom, without the anxiety of a possible fall.

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    1. lynners: I hope that it does look better - and it will certainly be safer. And worrying while I have my morning shower hasn't been a positive.

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  64. Remodeling is like living in hell, I've heard. Hope you get through it. Strong tea, maybe laced with something even stronger. You can't even go stay with your brother because of his house problems. I hope Mr. Fluffy can be found and held accountable for ruining lives. I hope Mr. Fluffy isn't a cat because they never are accountable for anything. What a name, though. "Mr. Fluffy".

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    1. I just met a woman out camping. She has MS, now about my age. They travel in their camper van each summer to visit their kids who live all over, but two live in Oregon. The couple live in MIchigan. She walks with the aid of two walking sticks and needs things flat. She's really sweet and has had MS her entire life she said.

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    2. Strayer: Mr Fluffy is a past person so can't be held any more accountable than cats. I liked hearing about the woman you met camping with MS. I hope she continues for years to come.

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  65. I feel completely redundant because after reading all the wonderful comments of others to you today I can only add that I will be keeping you and your brother in my thoughts in the coming days as you walk your respective paths. As usual, I am late to the party (you should excuse the expression) but hope that all turns out well for you both. You will certainly be missed in blogland until you return. Be well. Please.

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    1. rhymeswithplague: Thank you so much. You are right - they are wonderful comments and yours fits in very well.

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  66. Dear Sue, this posting must have been hard for you to write. I know you really don't like talking about your physical ailments. Pain. Down-in-the-dump-ness. But I'm grateful that you have shared what life is being life for you right now--both on the physical level with your own body and on the physical level with regard to the bathroom. The real plus here is that its remodeling will make life so much easier for you. More enjoyable.

    I'm sorry to learn about your brother and his wife. That whole asbestos thing has been a terror for so many, many people. I will see them surrounded by the white light of peace and harmony.

    Sue, one of Robert Frost's poems ends with "we may choose something like a star to stay our minds on . . ." And somehow that came to mind as I read your posting. I hope you can choose something--a bird or a flower in the garden or a time of day and simply let yourself slip easily into the beauty or the moment to find the peace that awaits you there. You are a connoisseur of beauty. A creator as well.

    I so hope that all the stress of the renovation and of the response of the cats and of your concern for your brother will not make the symptoms of MS worsen. Please be gracious to yourself. Peace.

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    1. Dee: You are right. I don't like talking about my MS. It is boring for me, and must be so much worse for everyone else. I will be fine, the cats will recover and hopefully my brother's issues will also be resolved.
      The bathroom modifications are a step in the right direction. Step one in looking after myself better. And the garden, the birds and books are a gift.

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  67. massive love and empathy from Ballarat. I would go in the wardrobe and moult I think. There is a spray which is supposed to calm kitties, cannot recall the name but when I mentioned it to Fen at Between The Wires she said her Bengal cat seemed to need a stronger dose, ha ha.
    You would think, wouldn't you, that your home Territory would have better arrangements for all of your needs. At least the www allows us to see we are not alone. much love and encouragement x x

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    1. Ann ODyne: Thank you. I had heard about a spray for calming kitties - but fear that poor Jazz would need to bathe in it. Which would cause issues of its own. They are doing better than I had hoped though. Traumatised during the day, but settling down each night.

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  68. You will be missed, dear friend. It is important to be safe, even though it is a royal pain. May the contractor who mis-quoted you have hemorrhoids AND a rash somewhere unpleasant. I will read some of your old posts until you return.

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    1. Susan Kane: Oooh, I like the idea of wishing a rash on them too. Thank you.

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  69. This is, sadly, one of those times when we are reminded that there's another human on that side of the screen. A beautiful human being, like you. I wish you and your family (especially your brother and his family) the best of luck. I will miss you (my Sundays won't be the same without your flowers). Take care and above all, take your time.

    Greetings from London.

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    1. A Cuban in London: I have just pre-prepared some flowers for Sunday. And thank you.

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  70. So sorry about the stupid MS, EC. Good luck surviving the bathroom renovations (and here's to many decades of enjoying your user-friendly shower).

    My Dad died of mesothelioma, so I am fiercely on the side of taking asbestos seriously. Where my father's asbestos exposure occurred, in NSW, there's a compensation fund managed by the state govt. The money in it comes from a deal cut with James Hardie. The deal was bodgy-as (i.e., a finite sum that will, it's pretty certain, run out before all the James Hardie-related asbestos has done its damage), but it's something. I wonder if there's a similar ACT fund for victims of Mr Fluffy-related asbestos. Slater & Gordon are the go-to people on this kind of thing (as you probably already know).

    Sending love and hope on all fronts xx

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    1. Alexia, Baron von Harlot: Mesothelioma is a very, very nasty way to go. My heart aches for you and your family - and everyone affected by it.
      There doesn't seem to be a fund for Mr Fluffy victims. Yet. I am certain it will come.

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  71. It's so dangerous to put yourself on ignore when fighting such hard conditions. Please, please take all the care of yourself you can. I know you're brave, and obviously wise and have ingenuity. The brain fog must be insufferable for you. One's fallen over me thanks to all the additional pain in the last year, and it feels like I'm getting dumber and less capable all the time. If you would ever like to talk about this, or anything, you have my e-mail. You also have my prayers.

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    1. John Wiswell: Thank you so much. I am sorry to hear that you know about the brain fog first hand. Your brain is so agile and such an integral part of who you are. It is terrifying isn't it?

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  72. Bloody hell...

    However, asbestos is usually not too much of a problem unless and until it is disturbed, during renovation or removal.

    Can't think of anything more positive to say than that. Sorry.

    I'd pray too, but I don't think anyone is listening, so I'll just send out a curse on your MS and tell is to buck up and improve. That may work.

    Good wishes

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    1. "tell it", I meant.

      I'll be more careful to get the curse right.

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    2. Andrew MacLaren-Scott: Curses (carefully directed) gratefully received. Sadly the loose fill asbestos doesn't seem to need disturbance to become a problem. It filters its way through the gaps and causes problems even without renovations or disturbance.

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  73. My recent ear infection which causes giddiness is still with me as i write. it manifests itself when i arise from sleep or sitting for lengthy periods, I was ok until a half hour ago I got out of the shower; (water in my ears) now I will be off to bed, the safest option, however, I do feel so much better when I read of your multiple afflictions which make me feel I should not be complaining.. In your case I hope everything turns out for the better.... Best wishes . Vest.

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    1. Vest: Complain as much as you need to - ear infections are sucky things. As is giddiness, wherever it comes from.

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  74. I am so sorry to hear that you are going through this. You are the most lovely lady. Take care of yourself, because if anyone deserves a bit of self care, it is you. I will keep you in my prayers.
    Love from Florida,
    Caroline

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    1. totallycaroline: Thank you. I do have some truly wonderful people visit me.

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  75. I am so sorry to learn that your MS is getting worse! That is so awful. My husbands mom had that disease. I will miss you if you aren't here. But I do understand that it is hard for you. BIG HUGS! How is SP doing? I hope things work out for your brother and sister-in-law. Hope it gets better soon. But I guess important things never go fast. I didn't see this post until today. Please take care of yourself. You are important too.

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    1. Teresa: Thank you so much. The smaller portion will need another operation - but can't get into to see the specialist before November. So mid next year probably. He has good days and bad days - but it is so very nice to see that he can have good days again.

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  76. I missed this post and only reading it today but my heart is greatly saddened by your news and your MS getting worse. Although a bit of an up heaven, it will be good to have your bathroom that makes life a bit easier for. Now I am stunned that your broths home will have to be demolished without knowing and the ins and outs of the situation. Now you worrying will not be good for you. YOU have no control of that situation. I have a couple of friends with MS and it seems to affect individuals differently.

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    1. Margaret Adamson: If I knew where my worry button was I would disconnect it. Permanently.
      You are right, MS does affect different people in different ways. And affects the same person in different ways at different times - which is one of the reasons I believe that a definitive cause is needed before any cure can be found.
      My brother is one of perhaps a 1000 who look likely to lose their homes in my state. Scary times.

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  77. How did I miss this my friend? You are really facing some challenges. Wish I could wave a magic wand for the MS. However, I can tell you that your bathroom changes will be worth the effort. We had a handicap accessible bathroom added for Ron and while it was wonderful for him, I never realized how wonderful it would be for me now that I am facing a hip replacement. You are doing a very necessary thing and you will be happy with the changes. As far as the workers, keep wishing hemorrhoids for them because they can be a bane to our existence.

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    1. Grannie Annie: How nice to hear that your bathroom was wonderful for Ron - and is paying dividends for you too. Tradies seem to be much the same the world over. Sigh.

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  78. What a gorgeous patio! I can just imagine how much you must enjoy sitting there....The trees winding around the posts and making a canopy of beauty overhead --- stunning!

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    1. Molly Bon: We do love our deck. And relish its beauty.

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  79. Sorry to hear of all the bathroom and asbestos troubles, though your wry wit makes even them entertaining reading!

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    1. Molly Bon: Without laughter (however inappropriate) I would have drowned a long, long time ago.

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