More whinging

I have been in a lot of pain recently and it has brought out my psycho bitch from hell.  I have a lot of difficulty getting up from chairs, bed and the toilet.  Also walking.  And dammit, swimming which usually helps, now causes more pain.  My hips are giving me a lot of grief and my hands and legs are not far behind.  Jazz is not helping me, and goes into attack mode many, many times each day.

Earlier this week I went to see my neurologist.  This time he listened to me when I said that I was in significant pain.  Sadly I think the fact that the smaller portion nodded in agreement when I explained that I was waking the household shrieking in the small hours had something to do with the neurologist deciding it was time to do something to alleviate the pain.

So he prescribed new, and expensive, medication.  It will cost me nearly $100 a month.  Ouch.  I don't yet know how much of that I will get back from my health fund.  Less than 50% I expect.  I have started taking it.  It doesn't eliminate the pain, but it does take the edges off.  A good start.  It also turns me into a space cadet.  My brain is full of fog.  And if I move suddenly the world turns with me.  Other effects that may or may not emerge to delight me are nausea, vomiting, weight gain, constipation, diarrhea, suicidal thoughts.  Oh joy, oh bliss.  All things I can do without.  And I love the way the pharmaceutical company hedges its bets on what to expect.  Sigh.

So, because I am a firm believer in the virtues of denial I waddled/wobbled into the garden.  We have had a few days of glorious sunshine and unseasonable warmth.  Things are springing out of the ground everywhere.  There is not much in bloom yet, but there is the promise of many, many glorious things to come.

Some of you may remember that I was seduced by this Brazillian Edelweisse, and now it has started shooting.  Excitement.

And outside, everywhere I look, things are poking through the ground.  There is not much in flower yet, but a heap of promise for the weeks to come.  More excitement.

And while I was wandering round with my camera, I was being observed.

Two galahs, separated by a pair of corellas.  And when I came inside, they came down and squabbled over the feeder.

Whinging, weepy, wobbly Wednesday

The smaller portion had an appointment with his specialist so we headed off to the hospital this morning.

The outpatient's clinic was chocka.  The specialist was over an hour and a half late, and couldn't access the smaller portion's record because the hospital computer server was down.  He is however, happy with the smaller portion's progress, and is talking about reversing the colostomy in December/January.  With however the rider that an ileostomy might be necessary.  WTF?  Smaller portion heard only what he wanted to hear and came home v happy, moaning that it was too long to wait.  He also has the all clear to drive again and to lift things - which includes the cats.

And I can't stop my eyes leaking.  I have been running on empty for too long, am super, super tired and my bones hurt.  At the moment in addition to the usual MS pain and difficulties getting up and down both hips are giving me grief.  It hurts to sit, walk, or lie down.  Standing still is OK once I have levered myself up.  My brain is out to lunch and didn't invite me.

And yes, I know that I am being more than a tad unreasonable, but I have had enough.  More than.  I don't want to play this game anymore.  And I am on call for Lifeline tonight from 5.30 until 7 tomorrow morning.   Hopefully a very, very quiet one with all of Australia content with their lot.  Unlikely.  (While there are Lifeline centres across Australia all of us answer calls Australia wide on a first in best dressed basis.)

On the positive side the cats will probably be as happy as himself.