Wet and Aggressive Corella challenges Magpie

Wet and Aggressive Corella challenges Magpie
Showing posts with label fatigue. Show all posts
Showing posts with label fatigue. Show all posts

Tuesday, 3 December 2013

Surgeon's Playground

We went to see the smaller portion's surgeon on Friday.  After examining the skinny one he commented that his belly was 'a surgeon's playground'.  True - and I wish someone had told them to play nicely.

After six abdominal surgeries it is strongly reminiscent of Frankenstein's Monster.  And there will be another operation in the New Year.  Hopefully the last but no guarantees.  Sigh.

The smaller portion drove off to visit a friend a little while ago.  The friend lives more than 600 kilometres away so he will be gone for a couple of days.  Is he well enough?  I don't know, but he is an adult and it isn't my decision.

And I am going to revel in being home alone.  I am tired to the bone and beyond, my pain levels are high and bits of me are non-functional.  There is cleaning, weeding, shopping and baking to do - and they aren't going to happen.  And will still be there when I surface again.  

I have a commitment to Lifeline and another to the Multiple Sclerosis Peer Support Program which I will honour - and everything else can go hang.

Give us this day our daily whinge.

Thursday, 12 July 2012

Finally we are moving forward.

What a week it has been.

The smaller portion was operated on last Friday to restore an ileostomy.  Not the outcome either of us wanted, but necessary.  In the following days his surgeon gained the nickname of the 'invisible surgeon'.  He apparently made no visits to the hospital over the weekend, leaving it to the hospital registrar or to the intern.  Their visits all took place at a time when the smaller portion was either non compos mentis, asleep or in the shower.  We know that if either a bagless state or a return to the more manageable colostomy are possible at least one more and more likely two more operations will be necessary.  We wanted to discuss what had been done, and what the smaller portion's could expect in his future.  It seems these are unreasonable requirements.

Finally on Monday the smaller portion was allowed clear fluids.  Which he promptly vomited.  So they moved him back to nil by mouth.  He was rushed off to x-ray and there was talk that he had a new blockage - in the small bowel to match the untreated one in his large bowel.  There were murmurs of leaving it to settle by itself. There were also talks of further surgery.   His sister and I were less than happy and tried (very hard) to make an appointment to see his surgeon.

'The doctors do their rounds between six and eight in the morning.  You would not be welcome.'
'You could come in around nine and ask to have the registrar paged.  Lots of doctors (including by inference the one we wanted) are on holidays.  It is school holidays you know.'

So we came in the next morning, arriving at about quarter to nine.  The registrar was paged.  And paged again, and again, and again.  Finally the intern arrived to say that if we waited he knew we were here.

The registrar arrived (over three hours after he was first paged).  He really didn't want to talk to us.  Tough.  He pooh-poohed the idea that the smaller portion had another blockage, while leaving it open as a remote possibility.  He professed himself very happy with progress, but refused to discuss any long term prospects.  'They are matters which should be discussed with the surgeon at the follow-up consultation.'  He agreed (when pushed) that it may benefit the smaller portion to hear that he didn't have another blockage.  When it became obvious that we were not going anywhere he proceeded to do just that, adding that the smaller portion could have fluids again.

Which the smaller portion lost fairly dramatically during visiting hours that night.  I gather that many visitors to the ward  (we were not there) were adversely affected.  How sad, never mind.  Back to ice and intravenous anti-nausea medication.  We also found out - after the event naturally, that the smaller portion has been on the emergency surgery list for the twenty-four hours which included our discussion with the registrar.  Hiss and spit.

The next night?  The same as the first, just a little bit louder and a whole lot worse.

Somewhere in the middle of the week we, as opposed to he, had a very bad day.  I made myself a cup of tea.  I put the teabag in my cup, added the water and then the milk.  I took a sip.  I took another sip.  It was cold.  I hadn't turned the jug on.  I finished it.  Later that day his sister wanted a cup of soup.  She tipped the packet into her bowl.  She added water.  She stirred it, she tasted it, you guessed it. She drank it.   We think it was on the same day that I shut her in the garage.  Like a good passenger I hopped out of the car and opened up the garage.  She drove in.  I shut the garage.  'Haven't you forgotten something?'.  'No, what?'  'Me.'  Oops.

Today we have had a turn around.  The doctors have been round and have promoted him to eating food again.  And he had porridge (which he dislikes) for breakfast and an egg and lettuce sandwich (which he hates) for lunch.  When last we saw him he had retained both of them.  We have however told him that if the hospital makes going home noises tomorrow he is to tell them that he doesn't have enough money for a taxi home, has no house keys and has no-one to pick him up.  I hope he heard that.

There have, as usual, been some wonderful sights to brighten our days.

Early morning glory.




Birdy joy at the hospital.







More birdy joy.






And the delights of a gentle rain and low cloud down the valley this afternoon.




Thank you all for your support and good wishes.  They have meant a lot.  In the coming days I hope to be able to come back and pay some long overdue visits to your blogs.

Sunday, 27 February 2011

Achievements

I am seriously knackered.  However it is a good  knackered.

The usual Saturday tasks happened - washing and changing sheets etc.  (And I love the smell of clean sheets - if there was a clean sheets fairy I would have them every day).  And sweeping of the back deck.

And then I finally finished the curtains and himself hung them for me.  The hanging needs some adjustment (a bit of bunching) but they are a decided improvement.  Both of us are pack rats and the room needed lightness so the plethora of things could be seen.  And grotty green velvet is not a suitable backdrop for much.  If anything.

Then I was on a roll.  So I made some pistachio and golden raisin fudge.  A bit of a worry.  It is simplicity itself to make and unfortunately even easier to eat.

And then I went on to make a zucchini crust pizza.




The first photo shows the crust before its first stint in the oven.  It didn't turn out quite as crisp as I would have liked - think zucchini frittata, but the taste was good.  And himself was having steak so I had the pizza to myself with mushrooms and asparagus and tomatoes from the garden and onions and garlic and a little cheese.  Next time I will probably turn the oven up but it was a satisfactory experiment.  And there is plenty left for tonight and probably tomorrow.

This morning we went to the markets.  Flowers for the house - a regular luxury, sour dough olive bread (ditto) and a birthday present for my nephew in California.  This is scary.  I was not a good aunt and now I am a great aunt - five times over.  And I have never met my nephew's wife or their boys but I email with them LOTS and she makes my day on a regular basis.

When we came home from the markets the cats were in mad mode.  I can only assume that there is red cordial in their whiskas.  Jazz was running through the house at full pelt, leaping to the cook top, then to the fridge and climbing from there to behind the cupboards.  A feat he was very pleased with.  It is disconcerting to hear loud purrs emanating from behind the cupboards.  But lovely.  When he re-emerged Jewel ambushed him and the chasing games began again.  A hoot to watch.

So, I did the ironing and have done very little of a productive nature since.  One of the smaller portion's aunts liked ironing because it is 'quiet and clean' but I can't agree.  But she had five children and I would think that quiet and clean jobs were rare.

No gardening happened, but the weeds will wait for me.  They will grow true, but they will still be there when I get into the garden next.  And I am thinking of all the spring bulbs I want to put in .....